It took me the better part of Sunday to get through this story and the accompanying videos. The time that wasn't spent reading and watching was spent thinking about Walker, the author's son who was born with an extremely rare and singularly devastating genetic disorder. I then spent the better part of yesterday trying to express how this story, these people made me feel.
There is strength and grace and courage like nothing I have ever seen in the way these children and their families live and in the way this father tells his child's story. If you only have time for part of it, watch the video in Part 3, Chapter 1: Blink of Light.
There is strength and grace and courage like nothing I have ever seen in the way these children and their families live and in the way this father tells his child's story. If you only have time for part of it, watch the video in Part 3, Chapter 1: Blink of Light.
Labels: links, The Big Picture
posted by Paige at 7:40 PM
2 Comments:
It's amazing what comes out of people's hearts when they're given the worst possible challenges to live with. He's got amazing parents. Walker..........
Thanks for sharing this. Shannon is right - it's amazing.
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